Joel James MS, Senedd Member for South Wales Central has met with Ivor and Sarah Washbrook and Luke and Tammy Daly at the Welsh Parliament to raise awareness of Angelman Syndrome.
Angelman Syndrome is a genetic disorder causing severe learning difficulties and issues with movement and balance. Sadly, most people with Angelman Syndrome will never talk and some will never walk- with many needing continuous care for the rest of their lives.
There are approximately half a million people worldwide living with Angelman Syndrome, including around 300 people here in Wales. Fortunately, there is significant progress in medical research around the world, with a mission to cure Angelman Syndrome.
Speaking after the meeting, Joel James MS said:
It was brilliant to meet Ivor and Sarah Washbrook and Luke and Tammy Daly at the Welsh Parliament to raise awareness of Angelman Syndrome. Early diagnosis and post-diagnosis support, for both the individual and their families, is crucial - but is desperately lacking. Ivor and Luke are an inspiration to us all and it was wonderful to meet them both. Let's together fight for more support for individuals and their families affected by Angelman Syndrome.
